I think I forgot to post that Jackson doctor (GI) doesn't think he's allergic to anything including Milk (according to his biopsy). Which would be great since he's been eating soy and rice milk, yogurt, and cheese. It doesn't explain why he pukes every time I give him cow's milk. So I'm supposed to try milk again. I'll let you all know how it goes. I'm a little scared.
Friday, November 30, 2007
Posted by Chauntel at 9:03 PM
Wednesday, November 28, 2007
Posted by Chauntel at 11:22 AM
Sunday, November 25, 2007
O.K. so everyone already knows we're home from the hospital, but I just had to share how very happy I am to be here. All the way home from the hospital I was so excited to get home. It was quit a different experience being at the hospital with out Jeremy this time. I don't know if I could have handled another night there. I think having my home teacher come up and hold the baby so I could call family and get something to eat saved me (and having a great book to read)(i think i lost 5 pounds while I was there, it's amazing how not eating does that) I think Jeremy told everyone that the baby wouldn't let me put him down for the first 24 hours. It was a little hard to go to the bathroom and get sleep that first day.
Now that we're home, I think my body and mind have check out for a while to deal with the stress of the last few weeks. I'm ready to go back to normal but my mind and body are still checked out (I can see it all over our cluttered house) It doesn't help that all the kids are sick, and it's freezing and raining outside. The baby started coughing the day before surgery and now has a temperature again. I'm going to see his doctor Monday or Wednesday.
In light of Thanksgiving and my gratitude post a few weeks ago, I'm going to share some of the things I'm grateful for.
I'm grateful for the experiences that the Lord gives me to see what I'm made of. A lot of those experiences tell on me and what I truly have a testimony of. I hope that makes sense. I think a lot of times we say we have a testimony or faith in certain principles, but until that principle has be tried we can't truly know for ourselves.
I'm grateful for a loving, helpful, faithful, passionate husband. I only knew my husband for 6 months before we got married. The Lord truly blessed me with a good one. I've heard too many sad story to not know how truly blessed I am to have Jeremy in my life.
I'm grateful for happy, beautiful, smart, healthy kids (and by healthy I mean it could always be worse than it is. I see a lot of different situations in my visits to the doctors and children's hospitals)
I'm grateful for family. I think one of the blessing that has come from all the many health problems on both sides of the family has been, more communication and connecting. Jeremy and I both come from amazing families. I couldn't have asked for better families.
I'm learning more and more about what it means to be grateful for trails. My sister is a great example of that. She blew my mind and my whole argument when she said she's grateful for the trials she's going through right now. She was the one reason I couldn't understand gratitude for trials in the first place. It's easier when you're the one going through the trail than when loved ones are going through them (in my experience anyways). Don't get me wrong I've always been able to see blessing all around me in the mist of hard times. Life is to wonderful to let one bad experience or trial sour your whole outlook on life. I can even see blessing that come from all trials, but I can't be grateful that Rochelle has breast cancer or for Jackson being born with coronal synostosis. But I guess those aren't my trials to begin with so I don't have to be grateful for them. I however still have side effect or my own effect that come from their experiences that I need to find gratitude in. I hope my feels make a little sense. I'm not as grand as Jeremy and expressing myself in writing.
Posted by Chauntel at 8:41 AM
Friday, November 23, 2007
Posted by Chauntel at 12:36 PM
Tuesday, November 20, 2007
Isaac's been asking for a mohawk for a while now, so while we were waiting on news about Jackson, we did it. It's a little off-centered, but he kept wanting to see it in the mirror and moving his head. He loves it. When school starts next week, I don't know if he'll let us shave it off.
Posted by Chauntel at 3:24 PM
I just sent Chauntel and Jackson off to the hospital this morning. I'm not able to go due to a virus that I have come down with the last few days. I haven't been able to even get out of bed since Sat. night. The doctor told me yesterday to stay away from the baby and pretty much told me to not even go to the hospital to see him. I can't believe the timing of all of this. Chauntel has pretty much been a single mom for the last few days, and will stay with Jackson until he comes home. I wish so much that I could be there for him also. When he had his last surgery, we were both there - for Jackson and for each other. I was telling Chauntel again today how I felt like I was almost letting Jackson down but then said that I guess it's a blessing that I can be here for Makayla and Isaac during this also. After I said that, it really hit me how true that was. I'm feeling a lot better today, but it's relative to how I was the last few days.
As I was in bed yesterday really hating life at the moment, Isaac brought me a cup of milk that he got all by himself for me. I was asleep when he brought it, but when I woke up, he asked if the milk made me feel better. I told him that it did, so he smiles really big and runs out of the room. He comes back a minute later with his stuffed rhino that he sleeps with every night for me to lay down with. It broke my heart how much he was wanting to help me. He then came back with a stuffed frog and his favorite books, followed by his pirate ship filled with toys to play with and then a plate of his favorite rice that he got out of the fridge - he even put it on my favorite KY Wildcat plate. I told him again and again how much he was helping me feel better. Chauntel was gone all day yesterday with Jackson's pre-op appointments and so while I was in bed, Kayla and Isaac pretty much did as they pleased all day. I was so impressed with how good they were all day. They checked on me every 20 minutes or so, would get me water when I needed, and Makayla even came in to tell me that they had turned off the TV to do other things.
I think that from now on, the updates will be on Jackson's other blog that we thought he was finished with already. The link to his blog from his previous surgery is on this blog. www.jacksonsmellon.blogspot.com He goes into surgery at 7:30 this morning. Chauntel and him left at 5:15 to get there for his pre-surgery stuff. We thank everyone for their concern and support and will keep ya'll posted on his stay at the hospital.
Posted by Chauntel at 5:21 AM
Sunday, November 18, 2007
Sorry I didn't post sooner. Jackson's surgeon thought it was fine to wait til Tuesday, for surgery. So tomorrow he has pre-op and Tuesday's the day.
We're all sick today, but poor Jeremy is so sick.(actually the kids aren't anymore or they're at the tails end of being sick) I hope Jeremy feels better by Tuesday. He's eating lots of chicken soup and oranges trying to feel better.
We stayed home from church today because we were sick, but Jackson and I were going to anyways to keep him health:) I dislike staying home from church so much. It is hard getting ready for church alone for 8:30 church, and sitting through sacrament alone is hard, but staying home on Sundays is so much harder than going. I don't know what it is, but keeping the kids entertained and the house clean all day is absolutely impossible. So at the end of the day the kids are so cranky and the house is a mess, both of which make mom cranky and very tired (so off to bed I go @ 8:15:) I love ya all.
Posted by Chauntel at 8:07 PM
Saturday, November 17, 2007
Jackson went for his check-up yesterday, to get cleared for surgery. His pediatrician wanted to do some blood work (just in case) She's afraid he has immune problems or growth hormone problems, etc etc. So on Monday we'll get results from that, results from his gut biopsy, and his head gunk culture. That should be an interesting day. He ped. said that his white blood count is elevated (Rochelle you might understand what that means) His head is still swelling more, and he still has a fever. She was wanting us to go back to the E.R. last night. But after talking to Jeremy then the craniofacial surgeon (that's doing his surgery) They decided that we should go to see him today (Saturday) at 10:30. Then the surgeon will decided what to do. So we could go into surgery today.
We cut the babies hair last night to see his head better and so the doctor could see it better. he woke up today with his left eye also most swollen shut. I wish I could get our new camera to download picture so you all could see how horrible my little man looks:)
I think I'm pulling for surgery today. I feel the sooner the better. I love you all.
Posted by Chauntel at 6:51 AM
Wednesday, November 14, 2007
Posted by Chauntel at 9:10 PM
Thursday, November 08, 2007
Posted by Chauntel at 3:46 PM
Posted by Chauntel at 9:06 AM
PS you can't really tell by the pictures how bad his head looks. but it's pretty yucky. If you look on his temple you can see a little swelling. That was taken a few days ago. It's gotten a little bigger since than.
Posted by Chauntel at 8:55 AM
Monday, November 05, 2007
Posted by Chauntel at 8:41 PM