Jeremy is such a Super Dad. He took Jackson and Isaac (who were both tired from last night's adventures) to Jackson's 8:30 Dr. appointment. He had to leave at 7 to get there on time. At the appointment, the Doctor was upset that I hadn't gotten an endoscope done alot sooner and so they scheduled one for Monday. Then while he was there, Jackson's Pediatric Dr. called to see how our ER visit went. She got very upset that the ER didn't do more and let us go home. So she called Jeremy back with an appointment to the Crainofacial specialist at 11:30 at the same hospital they were at.
I had a Dr appointment, so after my appointment I headed straight over there. By the time I got there they were in the waiting room bundling up to leave:(
The Crainofacial Surgeon wants another CT scan done. The one they did at the ER wasn't good enough (I could have told them that, he was screaming and moving around the whole time, because they didn't want to put him under, probably because it would have been more work for them) He than said that it looks like a CSF leak. There could be a slight chance it's just irritation from the plates and screws. That's why they need the CT scan. If it is a leak, they're ready to operate ASAP. The big bummer is that none of the crainiofacial Surgeons in all of Dallas area are in our insurance network:( They seem to think that even if we tried to have the surgery done in Houston, because we've moved, it would be out of network also. So his Dumas (or skin of his brain) was probably punctured during surgery and fluid has been leaking since. Which makes sense why the helmet Dr. was so stumped, but it doesn't make sense why the surgeon didn't catch it at 6 months after surgery. Especially since he had fluid (which we thought was bone) coming out the top of his helmet.
We'll keep you posted. We're trying now to get someone to call us back to schedule a GOOD CT scan (GOOD idea) I should ask for a refund for last night!
I love you all