Monday night we were sitting at the table trying to figure out how I could go to Houston with Jeremy and Jackson. Jackson had an appointment with his original surgeon, and I really wanted to be there. Up until then, we had been switching turns taking him and then having to relay messages. That is so hard to do. Unless of course you speak doctornees. So at 6:oo we decided to all go. And by 7:00pm we were all off to our great wonderful friends the Carter's home. Without them I wouldn't have been able to go. They even watched Makayla and Isaac while we went to the appointment. (Thank You)
I'm glad I went. We feel a lot better about the choice to have the doctors here in Dallas open him up again. He will be having surgery on Tuesday, November 20th. We tried so hard to still be able to go to KY for Thanksgiving. We are so very sad we won't be there. Everyone was going to be home this time, which I don't think has happened since Makayla was 6 months old. Since then, there are 6 more grand kids and one new spouse. It really would have been amazing.
Jackson has an infection. The lumps on his head (which are so big) are full of gunk. The one on top of his head got a red lump on it that popped the other day. I can't believe how much gunk came out. However much your imagining, triple that and you might have it right. It was so thick and yellow-green. I showed Isaac and told him Jackson had snot coming out of his head.
It's really crazy. All the doctors, three pediatricians, one nurse practitioner, two neurosurgeons, two craniofacial surgeons, and a handful of interns that we saw have never seen or heard of this happening, especially this far out from the surgery and this severely.
On Tuesday, they will open him up along the same cut (ear to ear) and flush his skull, scrub it and clean it really good, treat the infection and make sure everything else is O.K. That's it. I'm so glad they don't have to take his skull off again (we all thought they might have to at first) He'll be in intensive care one night and then maybe go home the next day. They said one maybe two nights. I hope only one. It's so hard being away from the other kids.
Oh yeah, Jackson also had an endoscope done on Monday. His G.I. said he doesn't have reflux and they are checking to see if he's allergic to gluten. I really hope he isn't. He also said he may have a eating disorder. Not like anorexia but towards textures. Which could be why he won't eat and why he gags and chokes on his food. Whatever that means I really don't know.